SENSE-PARK: Supporting and Empowering Parkinson pa.. (SENSE-PARK)
SENSE-PARK: Supporting and Empowering Parkinson patients in their home environment using a Novel SEnsory information system that monitors daily-life-relevant parameters of PARKinson disease and their
Start date: Oct 1, 2011,
End date: Sep 30, 2014
Parkinson's disease (PD) is the second most common neurodegenerative disease, and prevalence increases with age. This leads, in an aging society, to increasing personal, social and economic burden. To date, basically only symptomatic treatment is available, which application almost always leads to the feeling of dependence and lose of self-control in (a) person(s) with PD (PwP's). A further shortcoming in PD-related treatment is the limited quality of disease state-defining parameters. Recent ICT-associated projects have mainly been focusing on the "observation" of the user rather than giving feedback to him/her, and they bear little resemblance or application to the reality of living with PD. In addition, obtrusive measurements influenced results in particular in PwP's due to disease-caused neural network changes.The aim of the SENSE-PARK project is to develop an unobtrusive and empowering information system for use in the home environment, which provides the users with practical, engaging and motivating tools to monitor patterns in their condition. In more detail, the SENSE-PARK system will inform the users about motor and non-motor functioning in daily life activities ('being', data collection via RFID sensors and a wrist-worn data logger), leisure activities ('belonging', data collection via gaming console and adapted interface) & scientific environment ('becoming', for validation).The project will include PwP's at central positions to ensure the development of a user-friendly and effective system, and consequent dissemination. In addition, with the SENSE-PARK system, disease course-associated parameters which are provided to the user can also be provided to the doctor, to enable an intense and transparent at-the-point discussion between two specialists of the disease. The system will enable a more continuous, thorough and objective appraisal of changes during disease course with a far wider and more objective perspective, than clinical evaluation can provide.
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