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Better Live the end of Life
Start date: Sep 1, 2015, End date: Aug 31, 2017 PROJECT  FINISHED 

Europe is aging today. With a longer life expectancy, the question of the end of life for patients/ people has become a crucial issue in our societies. Professional actors are often not trained- or not trained enough-about the issue of the end of life; professional and family helpers feel isolated. Patients/people- whatever their backgrounds, their origins- are yet entitled to be treated with care and dignity till their very end by qualified professionals able to guide/ to support their families and themselves. This project aims at fostering the therapeutic alliance between professionals , families and patients/ people thanks to European synergies between various stakeholders. Our project is about training engineering and more specifically about creating a European framework about the end of life support. This primary reference tool will be created by training professionals thanks to the collaborative work of European professionals , whether medical or social, as well as institutions or family associations. This European framework about the end of life support will be the reference of further tools targeted at different publics: a guide for professionals to help them support families, documents for families experiencing the end of life of a relative, a matrix for creating a charter dedicated to organizations and last but not least a MOOC -a massive open online course- that will gather, organize all the created tools, add specific parts and propose programs depending on the person's status entering the MOOC. This project will involve professionals and family carers. The professionals have different backgrounds, whether medical, social or educational. The project includes different activities such as jobshadowing for professionals and/ or associations to gather the relevant information and to benefit from exchanges of practices to integrate in the various outputs. The duration of the jobshadowing will depend on the specificity of each organisation and the status of people involved. For example, the Italian partner which integrates 18 cooperatives will be able to send 8 professionals - managers and nurses - for a 12 day period. A testing period for the different outputs will take place during the six last months of the two-year project to acknowledge their relevance and consistency. Once the project will be over (as far as the European funding is concerned), European trainers will have the resource to develop/integrate customized contents about end-of-life support and adapt it to the profiles of their trainees. Through all the partners' networks, 2500 people will be informed of the project and its tools.

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