Real World Outcomes Across the AD Spectrum (ROADS) to Better Care

Deadline: Jun 14, 2016  
CALL EXPIRED

Topic Description

A lack of consensus on appropriate patient-relevant outcome measures for AD and the difficulty in acquiring relevant high-quality evidence makes it challenging to make informed decisions regarding AD care.

Defining relevant outcomes and then integrating a comprehensive range of AD-relevant health and social care data should allow a broader assessment of risk-benefit of new treatments and technologies to improve those outcomes.

The ROADS project will:

• Define a set of measurable patient relevant real world outcomes
• Outline a data strategy and identify data sources to characterize the spectrum of AD.
• Based on the data identified, provide recommendations of different approaches to model disease progression to enable better treatment selection and improved health care value for AD patients.

ROADS should provide an important initial step to help build AD-relevant real world data sets that are suitable for answering questions across the entire spectrum of the disease.

The project should also provide a road map of aligned outcomes and methods toward building data systems which will be used to plan a 2nd phase project.